Graduate Students
McEwan, J.E. et al. Evolving approaches to the ethical management of genomic data. Trends in Genetics (2012) 1-8. http://data2discovery.org/dev/wp-content/uploads/2013/05/McEwen-et-al.-in-press.pdf
Complete the Wellcome Trust Sanger Institute Survey Instrument: http://www.genomethics.org/
Undergrad Students
Textbook: C.N. Mikaii. Public Health Genomics: The Essentials. Chapter 4, 12.
Complete the Wellcome Trust Sanger Institute Survey Instrument: http://www.genomethics.org/
Musaccio, D. and Lucero, N. Genetic Testing and Privacy. In: Shaping Public Health Policy in the Age of Genomics. (2011) Chapter 4: pp.47-57.
http://www.geneforum.org/briefingbook
Fowler, G. The Genomics Health Policy Process: A Model of Deliberative Democracy. In: Shaping Public Policy in the Age of Genomics. (2011).Chapter 7: pp. 82-96
http://www.geneforum.org/briefingbook
Rodriguez, L.L. et al. The Complexities of Genomic Identifiability. Science. Volume 339. 18 January 2013. Pp. 275-276. http://www.marcottelab.org/users/CH391L_2013/Files/275.full.pdf
Elvidge,S. Gene survey: Do you want to know your future diseases? BioNews 643. February 6, 2012. http://www.bionews.org.uk/page_122851.asp
Kolata, G. DNA Project Aims to Make Public a Company’s Data on Cancer Genes.
New York Times. April 12, 2013.
http://www.nytimes.com/2013/04/13/health/dna-project-aims-to-make-companys-data-public.html?pagewanted=all&_r=0
Lawless, J. Spread of DNA databases sparks ethical concerns. Associated Press. July 13, 2013
http://www.philstar.com/world/2013/07/13/965049/spread-dna-databases-sparks-ethical-concerns
Skloot, R. The Immortal Life of Henrietta Lacks, the Sequel. New York Times. March 23, 2013.
https://www.google.com/search?q=The+Immortal+Life+of+Henrietta+Lacks%2C+the+Sequel.&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a&channel=fflb
Wolf, S.M. The past, present, and future of the debate over return of research results and incidental findings. Genetics in Medicine. Volume 14 (4). April 2012. Pp35-357. http://www.nature.com/gim/journal/v14/n4/full/gim201226a.html
MacKellar, C. Should persons affected b mitochondrial disorders not be brought into existence? BioNews 736. January 6 2014. http://www.bionews.org.uk/page_385343.asp
Bailey, R. The Next Gene Engineering Revolution: Curing Genetic Disease and “Designer Babies” Using Crispr. Excerpted story from The Independent, November 7, 2013. http://reason.com/blog/2013/11/07/the-next-gene-engineering-revolution-cur
Kolata, G. Web Hunt for DNA Sequences Leaves Privacy Compromised. New York Times. January 17, 2013. http://www.nytimes.com/2013/01/18/health/search-of-dna-sequences-reveals-
Marpuri, I.L. Researchers explore genomic data privacy and risk. National Human Genome Research Institute. April 8, 2013. http://www.genome.gov/27553487
Torrey, T. The Pros and Cons of Genetic Testing. About.com http://patients.about.com/od/yourdiagnosis/ss/genetictestingproscons.htm
Garavelli, D. Genetic markers: The dilemmas of discovering destiny. The Scotsman. September 1, 2013. http://www.scotsman.com/lifestyle/genetic-markers-the-dilemmas-of-discovering-destiny-1-2868005
Mai-Cutler. Through Dirt-Cheap Genetic Testing, Counsyl Is Piorneering A New Bioinformatics Wave. TechCrunch. April 23, 2013. http://techcrunch.com/2013/04/23/counsyl/
Kolata, G. DNA Test for Rare Disorders Becomes More Routine. New York Times. February 18, 2013. http://www.nytimes.com/2013/02/19/health/dna-analysis-more-accessible-than-ever-opens-new-doors.html?pagewanted=all&_r=0
Friday 05.9.2014 Guest Researchers:
Brian Drucker; Ken Gatter
Recent Comments