Week 6: Required readings

Graduate Students

McEwan, J.E. et al.  Evolving approaches to the ethical management of genomic data. Trends in Genetics (2012) 1-8. http://data2discovery.org/dev/wp-content/uploads/2013/05/McEwen-et-al.-in-press.pdf
Complete the Wellcome Trust Sanger Institute Survey Instrument:  http://www.genomethics.org/
Undergrad Students
Textbook: C.N. Mikaii. Public Health Genomics: The Essentials. Chapter 4, 12.

Complete the Wellcome Trust Sanger Institute Survey Instrument:  http://www.genomethics.org/
Musaccio, D. and Lucero, N. Genetic Testing and Privacy. In: Shaping Public Health Policy in the Age of Genomics. (2011) Chapter 4: pp.47-57.
Fowler, G. The Genomics Health Policy Process: A Model of Deliberative Democracy. In: Shaping Public Policy in the Age of Genomics. (2011).Chapter 7: pp. 82-96
Rodriguez, L.L. et al.  The Complexities of Genomic Identifiability.  Science. Volume 339. 18 January 2013. Pp. 275-276. http://www.marcottelab.org/users/CH391L_2013/Files/275.full.pdf
Elvidge,S.  Gene survey: Do you want to know your future diseases? BioNews 643. February 6, 2012. http://www.bionews.org.uk/page_122851.asp
Kolata, G. DNA Project Aims to Make Public a Company’s Data on Cancer Genes.
New York Times.  April 12, 2013.
Lawless, J. Spread of DNA databases sparks ethical concerns. Associated Press. July 13, 2013
Skloot, R. The Immortal Life of Henrietta Lacks, the Sequel.  New York Times. March 23, 2013.
Wolf, S.M. The past, present, and future of the debate over return of research results and incidental findings.  Genetics in Medicine. Volume 14 (4). April 2012. Pp35-357. http://www.nature.com/gim/journal/v14/n4/full/gim201226a.html
MacKellar, C.  Should persons affected b mitochondrial disorders not be brought into existence?  BioNews 736. January 6 2014. http://www.bionews.org.uk/page_385343.asp
Bailey, R.  The Next Gene Engineering Revolution: Curing Genetic Disease and “Designer Babies” Using Crispr.  Excerpted story from The Independent, November 7, 2013.  http://reason.com/blog/2013/11/07/the-next-gene-engineering-revolution-cur
Kolata, G.  Web Hunt for DNA Sequences Leaves Privacy Compromised.  New York Times. January 17, 2013. http://www.nytimes.com/2013/01/18/health/search-of-dna-sequences-reveals-
Marpuri, I.L.  Researchers explore genomic data privacy and risk. National Human Genome Research Institute. April 8, 2013. http://www.genome.gov/27553487
Torrey, T.  The Pros and Cons of Genetic Testing.  About.com http://patients.about.com/od/yourdiagnosis/ss/genetictestingproscons.htm
Garavelli, D. Genetic markers: The dilemmas of discovering destiny.  The Scotsman. September 1, 2013. http://www.scotsman.com/lifestyle/genetic-markers-the-dilemmas-of-discovering-destiny-1-2868005
Mai-Cutler. Through Dirt-Cheap Genetic Testing, Counsyl Is Piorneering A New Bioinformatics Wave.  TechCrunch. April 23, 2013.  http://techcrunch.com/2013/04/23/counsyl/
Kolata, G.  DNA Test for Rare Disorders Becomes More Routine.  New York Times. February 18, 2013.  http://www.nytimes.com/2013/02/19/health/dna-analysis-more-accessible-than-ever-opens-new-doors.html?pagewanted=all&_r=0
Friday 05.9.2014 Guest Researchers:

Brian Drucker; Ken Gatter